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TUES 06/04/2010 - These Regulations are made under section 33D of the Human Fertilisation and Embryology Act 1990 ("the Act")(9) and govern the procedure for applications for authorisations for the disclosure and use of disclosable protected information for medical or other research purposes.
Disclosable protected information is defined in regulation 2(2) for the purposes of the Regulations. Subject to exceptions set out in the Regulations, it is information kept by the Human Fertilisation and Embryology Authority ("the Authority") on its register, which relates to or identifies individuals during the period on or after the 1 August 1991 and on or before the 30 September 2009; or information entered by the Authority on its register after the 1 October 2009 in relation to a relevant individual. Relevant individual is defined in the Act as meaning a person who was or may have been born as a result of either treatment services (other than basic partner treatment services) or the procurement or distribution of sperm (other than partner donated sperm) in the course of providing non-medical fertility services.
These Regulations come into force on 6 April 2010.
The Red Book is the acknowledged authority on practice and procedure